L’assistenza spirituale nelle cure palliative: quali strumenti e competenze per soddisfare i bisogni spirituali?

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Linda Lombi, Martina Vanzo
Anno di pubblicazione 2024 Fascicolo 2024/1 Lingua Italiano
Numero pagine 18 P. 65-82 Dimensione file 452 KB
DOI 10.3280/SES2024-001005
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Keywords:cura spirituale; disagio spirituale; cure palliative; fine della vita; competenze de-gli operatori sanitari; curriculum degli operatori sanitari.

  1. Anandarajah G., Hight E. (2001). Spirituality and medical practice: using the HOPE questions as a practical tool for spiritual assessment. Am Fam Physician, 63(1): 81-88.
  2. Austin P., Macleod R., Siddall P., McSherry W., Egan R. (2017). Spiritual care training is needed for clinical and non-clinical staff to manage patients’ spiritual needs. Journal for the Study of Spirituality, 7(1): 50-63. DOI: 10.1080/20440243.2017.129003
  3. Balboni M.J. (2015). Everyday Religion in Hospitals. Society, 52(5): 413-417.
  4. Balboni M.J., Sullivan A., Amobi A., Phelps A.C., Gorman D.P., Zollfrank A., Balboni T.A. (2013). Why is spiritual care infrequent at the end of life? Spiritual care perceptions among patients, nurses, and physicians and the role of training. Journal of Clinical Oncology, 31(4): 461-467. DOI: 10.1200/JCO.2012.44.644
  5. Baldacchino D.R. (2003). Spirituality in Illness and Care. Malta: Veritas Press.
  6. Baldacchino D.R. (2005). The Nurse’s role in spiritual care: a comparative study between perceptions of patients with first MI and health carers in Malta. In: Beldean L., Zeitler U., Rogozea L., a cura di, Nursing Today. Romania: Editura ‘Alma Mater’.
  7. Baldacchino D.R. (2006). Nursing competencies for spiritual care. Journal of Clinical Nursing, 15(7): 885-896.
  8. Bisinella G. (2011). Quel soffio di vita che ci pervade. La risposta infermieristica al bisogno spirituale. Roma: Aracne.
  9. Bradshaw A. (1996). The spiritual dimension of hospice: The secularization of an ideal. Social Science and Medicine, 43(3): 409-419. DOI: 10.1016/0277-9536(95)00406-
  10. Butler A., Duffy K. (2019). Understanding the role of chaplains in supporting patients and healthcare staff. Nursing Standard, Oct 10.
  11. Chan M.F. (2010). Factors affecting nursing staff in practising spiritual care. Journal of Clinical Nursing, 19(15-16): 2128-2136.
  12. Charon R. (2019). Medicina Narrativa: Onorare le Storie dei Pazienti. Milano: Raffaello Cortina Editore
  13. Chochinov H.M. (2002). Dignity-conserving care - A new model for palliative care: helping the patient feel valued. JAMA, 287(17): 2253-2260. 
  14. Clarke J., Baume K. (2019). Embedding spiritual care into everyday nursing practice. Nursing Standard, 34.
  15. Clerici C.A, Proserpio T. (2022). La spiritualità nella cura. Dialoghi tra clinica, psicologia e pastorale. Cinisello Balsamo: edizioni San Paolo.
  16. Cornette K. (1997). For whenever I am weak, I am strong... International Journal of Palliative Nursing, 3(1): 6-13.
  17. Courtney Sellers S., Haag B.A. (1998). Spiritual nursing interventions. Journal of Holistic Nursing, 16(3): 338-354. DOI: 10.1177/08980101980160030
  18. Cumming A. (1993). Clinical spiritual care. Patients’ access to hospital chaplains. Nursing Standard, 8(13-14): 30-31.
  19. de Jager Meezenbroek E., Garssen B., van den Berg M., van Dierendonck D., Visser A., Schaufeli W.B. (2012). Measuring spirituality as a universal human experience: a review of spirituality questionnaires. J Relig Health, 51(2): 336-354.
  20. de Vries Jan M.A. (2019). The Psychology of Spirituality and Religion in Health Care. In: Timmins F., Caldeira S., a cura di, Spirituality in Healthcare: Perspectives for Innovative Practice. Switzerland: Springer Nature.
  21. Dein S. (2009). The role of health professionals in spiritual care: attitudes, practices and interventions. European Journal of Palliative Care, 16: 296-300.
  22. Ellington L., Billitteri J., Reblin M., Clayton M.F. (2017). Spiritual Care Communication in Cancer Patients. Seminars in Oncology Nursing, 33(5): 517-525.
  23. Galutira G.D., Velenzuela J.P., Basatan C.J., Castro-Palaganas E. (2019). Spirituality and spiritual care in nursing: a literature review. Philipp. J. Nurs., 89(1): 22-31.
  24. Gilliat-Ray S. (2001). Sociological perspectives on the pastoral care of minority faiths in hospital. In: Orchard H., ed., Spirituality in Health Care Contexts. London: Jessica Kingsley.
  25. Giske T. (2012). How undergraduate nursing students learn to care for patients spiritually in clinical studies – a review of the literature. J. Nurs. Manag., 20(8): 1049-1057.
  26. Glaser B.G., Strauss A.L. (1965). Awareness of dying. New York: Routledge.
  27. Good B. (1994). Medicine, rationality and experience: an anthropological perspective. Cambridge: Cambridge University Press.
  28. Gusman A. (2016). La famille face à la maladie en phase terminale. Ethnographie dans une maison de soins palliatifs au Piémont (Italie). Anthropologie & Santé, 12(12): 2-15.
  29. Halm M.A., Myers R.N., Bennetts P. (2000). Providing spiritual care to cardiac patients: assessment and implications for practice. Critical Care Nurse 20(4): 54-56.
  30. Harbinson M.T., Bell D. (2015). How should teaching on whole person medicine, including spiritual issues, be delivered in the undergraduate medical curriculum in the United Kingdom?. BMC medical education, 15(1): 1-13.
  31. Harrad R., Cosentino C., Keasley R., Sulla F. (2019). Spiritual care in nursing: an overview of the measures used to assess spiritual care provision and related factors amongst nurses. Acta bio-medica, 90(4): 44-55.
  32. Ho J.Q., Nguyen C.D., Lopes R., Ezeji-Okoye S.C., Kuschner W.G. (2018). Spiritual Care in the Intensive Care Unit: A Narrative Review. Journal of Intensive Care Medicine, 33(5): 279-287. DOI: 10.1177/088506661771267
  33. Ho R., Chan C., Lo P., Wong P., Chan C.L., Leung P., Chen E. (2016). Understandings of Spirituality and its Role in Illness Recovery in Persons with Schizophrenia and Mental-Health Professionals: A Qualitative Study. BMC Psychiatry, 16: 86: 1-11.
  34. Hollins S (2005). Spirituality and religion: exploring the relationship. Nursing Management, 12(6): 22-26.
  35. Hungelmann J.A., Kenkel-Rossi E., Klassen L., Stollenwerk R.M. (1996). Focus on spiritual well-being: harmonious interconnectedness of mind-body-spirit. Use of the JAREL Spiritual Well-Being scale. Geriatric Nursing, 17(6): 262-266.
  36. Kandasamy A., Chaturvedi S.K., Desai G. (2011). Spirituality, distress, depression, anxiety, and quality of life in patients with advanced cancer. Indian journal of cancer, 48(1): 55-59.
  37. Kleinman A. (1988). The illness narratives. Suffering, healing, and the human condition. New York: Basic Books.
  38. Kociszewski C. (2003). A phenomenological pilot study of the nurses’ experience providing spiritual care. Journal of Holistic Nursing, 21(2): 131-148. DOI: 10.1177/089801010302100200
  39. Koenig H.G., Al Zaben F. (2021). Psychometric Validation and Translation of Religious and Spiritual Measures. Journal of Religion and Health, 60(5): 3467-3483.
  40. Koenig H.G., Larson D.B., Larson S.S. (2001). Religion and Coping with Serious Medical Illness. The Annals of Pharmacotherapy, 35(3): 352-359.
  41. Koenig H.G. (2002). Religion, congestive heart failure and chronic pulmonary disease. Journal of Religion and Health 41(3): 263-278. DOI: 10.1023/A:102024100457
  42. Lombi L. (2024). La cura spirituale. Sfide e prospettive per una medicina centrata sulla persona. Milano: Vita & Pensiero.
  43. Lombi L., Murero M., a cura di (2023). Comprendere la cura della salute attraverso le Medical Humanities: scenari attuali e prospettive future. Studi di Sociologia, special issue.
  44. Matthews D.A. (1997). Religion and Spirituality in Primary Care. Mind/Body Medicine, 2: 9-19.
  45. McSherry W., Jamieson S. (2011). An online survey of nurses’ perceptions of spirituality and spiritual care. Journal of clinical nursing, 20(11-12): 1757-1767.
  46. McSherry W., Ross L., Attard J., van Leeuwen R., Giske T., Kleiven T., Boughey A., Network, E.P.I.C.C. (2020). Preparing undergraduate nurses and midwives for spiritual care: some developments in education over the last decade. J. Study Spiritual., 10(1): 55-71. DOI: 10.1080/20440243.2020.172605
  47. Sena M.A., Damiano R.F., Lucchetti G., Peres M.F.P. (2021). Defining spirituality in healthcare: a systematic review and conceptual framework. Front. Psychol., 12: 756080.
  48. McSherry W., Ross L., Balthip K., Ross N., Young S. (2019). Spiritual assessment in healthcare: an overview of comprehensive, sensitive approaches to spiritual assessment for use within the interdisciplinary healthcare team. In: Timmins F., Caldeira S., a cura di, Spirituality in Healthcare: Perspectives for Innovative Practice. Switzerland: Springer Nature.
  49. McSherry W., Ross L., a cura di (2010). Spiritual assessment in healthcare practice. Keswick: M&K.
  50. Meraviglia M.G. (1999). Critical analysis of spirituality and its empirical indicators. Prayer and meaning in life. Journal of Holistic Nurses’ Association, 17(1): 18-33. DOI: 10.1177/08980101990170010
  51. Miccinesi G., a cura di (2023). Assistenza alla persona malata: aspetti spirituali. Milano: Poletto Editore.
  52. Millingan S., Potts S. (2009). The history of palliative care, In: Stevens E., Jackson S. e Milligan S., a cura di (2009), Palliative Nursing. Across the spectrum of care, Oxford: Wiley-Blackwell.
  53. Monod S., Rochat E., Büla C., Jobin G., Martin E., Spencer B. (2010). The Spiritual Distress Assessment Tool: An Instrument to Assess Spiritual Distress in Hospitalised Elderly Persons. BMC Geriatrics, 10(88). DOI: 10.1186/1471-2318-10-88
  54. Murray S.A., Kendall M., Boyd K., Benton T.F. (2004). Exploring the spiritual needs of people dying of lung cancer or heart failure: A prospective qualitative interview study of patients and their careers. Palliat Med, 18: 39-45.
  55. Narayanasamy A. (2004). The Puzzle of Spirituality for Nursing: A Guide to Practical Assessment. British Journal of Nursing, 13(19): 1140-1144.
  56. Paloutzian R.F., Ellison C. (1982). Loneliness, spiritual well-being and quality of life. In: Peplau L.A., Perlman D., a cura di, Loneliness: A sourcebook of current theory, research, and therapy. New York: John Wiley.
  57. Parsons T. (1978). Death in the Western World. Action Theory and the Human Condition. New York: Free Press.
  58. Parsons T., Lidz V. (1967). Death in American Society. In: Shneidman E.S., ed., Essays in Self Destruction. New York: Science House.
  59. Puchalski C. (2014). The FICA Spiritual History Tool. Journal of Palliative Medicine, 17(1): 105-106.
  60. Puchalski C., Sbrana A., Ferrell B., Jafari N., King S., Balboni T., Miccinesi G., VandenhoeckA., Silbermann M., Balducci L., Yong J., Antonuzzo A., Falcone A., Ripamonti C. (2019). Interprofessional Spiritual Care in Oncology. ESMO Open, 4(1): e000465.
  61. Puchalski C., Vitillo R., Hull S.K. (2014). Improving the Spiritual Dimension of Whole Person Care: Reaching National and International Consensus. Journal of Palliative Medicine, 17(6): 642-656.
  62. Ross L., Giske T., Boughey A.J. (2021). Development of a spiritual care education matrix: Factors facilitating/hindering improvement of spiritual care competency in student nurses and midwives. Nurse Education Today, 114(1-3).
  63. Ross L., van Leeuwen R., Baldacchino D., Giske T., McSherry W., Narayanasamy A., Downes C., Jarvis P., Schep-Akkerman A. (2014). Student nurses’ perceptions of spirituality and competence in delivering spiritual care: a European pilot study. Nurse Educ. Today, 34(5): 697-702.
  64. Saunders C. (1996). Into the valley of the shadow of death, British medical journal, 313(7072):1599-1601.
  65. Saunders C. (2000). The evolution of palliative care. Patient Education and Counselling, 41(1): 7-13.
  66. Seale C. (2010). Death, Dying, and the Right to Die. In: Bird C.E., ed. (2010), Handbook of medical sociology (6th ed). Nashville: Vanderbilt University Press.
  67. Spinsanti S. (2021). Sulla terra in punta di piedi. La dimensione spirituale della cu-ra. Il Pensiero Scientifico Editore: Roma.
  68. Taylor E.J., Mamier I. (2005). Spiritual care nursing: what cancer patients and family caregivers want. Journal of Advanced Nursing, 49(3): 260-267.
  69. Timmermans S. (2005). Death Brokering: Constructing Culturally Appropriate Deaths. Sociology of Health and Illness, 27(7): 993-1013.
  70. Timmins F., Caldeira S., a cura di (2019). Spirituality in Healthcare: Perspectives for Innovative Practice. Switzerland: Springer Nature.
  71. Timmins F., Connolly M., Palmisano S., Burgos D., Juárez L.M., Gusman A., Soriano V., Jewdokimow M., Sadłoń W., Serrano A.L., Caballero D.C., Campagna S., García-Peñuela J.M.V. (2022). Providing Spiritual Care to In-Hospital Patients During COVID-19: A Preliminary European Fact-Finding Study. Journal of Religion and Health, 61(3): 2212-2232.
  72. van Leeuwen R., Cusveller B. (2004). Nursing competencies for spiritual care, Journal of advanced nursing, 48(3): 234-246.
  73. van Leeuwen R., Tiesinga L.J., Middel B., Post D., Jochemsen H. (2009). The validity and reliability of an instrument to assess nursing competencies in spiritual care. J. Clin. Nurs., 18(20): 2857-2869.
  74. Yang G., Tan Y., Cheung Y., Lye W., Lim S., Ng W., Puchalski C., Neo P. (2016). Effect of a Spiritual Care Training Program for Staff on Patient Outcomes. Palliative Supportive Care, 15(4): 434-443. DOI: 10.1017/S147895151600089

Linda Lombi, Martina Vanzo, L’assistenza spirituale nelle cure palliative: quali strumenti e competenze per soddisfare i bisogni spirituali? in "SALUTE E SOCIETÀ" 1/2024, pp 65-82, DOI: 10.3280/SES2024-001005