Patient engagement is recognized as essential for the quality of services for chronic diseases. The paper aims to explore the socio-organizational dynamics associated with the promotion of patients’ engagement and their transformation from passive consumers of medical services to partner. We present a collaborative study conducted with two health care services of a large hospital in Northern Italy, where patients and healthcare personnel cooperated to evaluate and reorient the clinical pathways towards participated processes centered on the patient. Practices were analyzed through a revised version of proactive analysis (HFMEA) and the psycho-social analysis of decision nodes of the clinical pathway, applied in the context of focus groups with mixed composition (patients, physicians, nurses, psychologists, social workers). Results revealed different representations of the nature of engagement and its nature as a changing and unstable process. In addition, the study highlighted professional assumptions and values that can give rise to an apparent participation. The study offers indications for designing collaborative practices in managing clinical pathways.
Keywords: Chronic illness, patient engagement, participatory research, focus group, HFMEA.
Silvia Gilardi, Chiara Guglielmetti, Sara Casati, Paolo Monti, Promoting engagement in chronic illness patients: a collaborative research pathway in "PSICOLOGIA DELLA SALUTE" 3/2014, pp. 58-79, DOI:10.3280/PDS2014-003004