Clicca qui per scaricare

La comprensione della diagnosi di DSD da parte delle madri. Uno studio sui processi di sensemaking attraverso una prospettiva semiotico-psicologica
Titolo Rivista: PSICOLOGIA DELLA SALUTE 
Autori/Curatori: Picione Raffaele De Luca, Francesca Dicé, Maria Francesca Freda 
Anno di pubblicazione:  2015 Fascicolo: Lingua: Italiano 
Numero pagine:  29 P. 47-75 Dimensione file:  130 KB
DOI:  10.3280/PDS2015-002004
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più:  clicca qui   qui 


Gli autori discutono il processo di significazione della malattia ed in particolare la ricezione della diagnosi in termini semiotici e psicologici. Viene presentata una ricerca qualitativa sul processo di significazione da parte di madri con figli che hanno ricevuto diagnosi di Disturbi della Differenziazione Sessuale (DSD). Viene osservato e discusso come il processo di significazione della esperienza di malattia e della diagnosi si configuri come un’esperienza di crisi e di rottura della continuità delle proprie esperienze. Il lavoro degli autori si articola in una prospettiva dichiaratamente semiotica, luogo di un possibile e fecondo incontro tra la psicologia culturale e la psicologia clinica dinamica, in cui viene considerata la mediazione tra istanze soggettive, intersoggettive e culturali. In tale prospettiva viene presentata e discussa la possibilità di ricercare nel testo delle interviste dei genitori, marcatori linguistici attraverso cui vengono definiti i posizionamenti e le modalità soggettive dei processi di significazione della diagnosi, della mediazione intra-inter-soggettiva, delle modalità specifiche di confrontarsi con i significati culturali, e della relazione tra la continuità e discontinuità generata dalla crisi di senso della malattia.


Keywords: Disturbi della Differenziazione Sessuale, processo di significazione della diagnosi, esperienza di malattia come discontinuità semiotica, marcatori linguisti di soggettività

  1. Bachtin M. (2001). Le forme del tempo e del cronotopo nel romanzo. Saggi di poetica storica. In: Id., Estetica e romanzo. [Aesthetics and novel]. Torino: Einaudi.
  2. Abbey E. and Valsiner J. (2005). Emergence of Meanings Through Ambivalence. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 6 (1): 1-18.
  3. Benveniste E. (1966). Problèmes de linguistique générale [Problems in general linguistics]. Paris: Gallimard.
  4. Brockmeier J. (1995). The language of human temporality: narrative schemes and cultural meanings of time. Mind, Culture and Activity, 2 (2): 102-118.
  5. Bruner J. (1990). Acts of Meaning. Cambridge. Mass: Harvard University Press.
  6. Bühler K. (1934). Spachteorie. Die Darstellungs funktion der Sprache. [Theory of Language]. Jena: Fischer.
  7. Cabell K.R. and Valsiner J. (2011). Affective Hypergeneralization: Learning From Psychoanalysis. In: Salvatore S. and Zittoun T., editors, Cultural psychology and psychoanalysis. Pathways to Synthesis (pp. 87-113). Charlotte NC: Info Age Publishing.
  8. Canguçu-Campinho A.K. and Bastos A.C. (2012). Ambivalences in the Transition to Motherhood: the Arrival of an Intersexual Baby. In: Bastos A.C., Uriko K. and Valsiner J., editors, Cultural Dynamics of Women’s Lives. Charlotte, NY: Information Age Publishing. Canguilhem G. (2007). Sulla medicina. Scritti 1955-1989. [About Medicine. Writings 1955-1989]. Torino: Einaudi.
  9. Caramelli N. (2005). Psicologia e metafora. Interpretazioni e problemi della ricerca recente. In: Lorusso A.M., a cura di, Metafora e Conoscenza. Da Aristotele al cognitivismo contemporaneo. [Metaphor and Knowledge. From Aristotle to contemporary cognitive science]. Milano: Bompiani.
  10. Cohen Kettenis P. and Pfallin F. (2003). Transgenderism and intersexuality in childhood and adoelscence: making choice. London: SAGE Publications.
  11. Crissman H.P., Warner L., Gardner M., Carr M., Schast A., Quittner A.L., Kogan B. and
  12. Sandberg D.E. (2011). Children with disorders of sex development: A qualitative study of early parental experience. International Journal of Pediatric Endocrinology, (1): 10., DOI: 10.1186/1687-9856-2011-10
  13. De Luca Picione R. (2013). An old debate but still alive, fruitful and able to renew itself: the language in psychology between the particular and the universal. Europe’s Journal of Psychology, 9 (4): 869-872., DOI: 10.5964/ejop.v9i4.689
  14. De Luca Picione R. (in stampa). On catalysts, binding, synthesis, integration. In: Cabell R. K., Marsico G., Cornejo C. and Valsiner J. (expected in 2014). Making Meaning, Making Motherhood. Annals of Cultural Psychology: Exploring the Frontiers of Mind and Society. Vol. 1. Information Age Publishing (IAP).
  15. De Luca Picione, R. (2015). The Idiographic Approach in Psychological Research. The Challenge of Overcoming Old Distinctions without Risking to Homogenize. Integrative Psychological and Behavioral Science. DOI 10.1007/s12124-015-9307-5.
  16. De Luca Picione R. e Freda M.F. (2012). Senso e Significato. [Sense and Meaning]. Rivista di Psicologia Clinica, 2: 17-26.
  17. De Luca Picione R. and Freda M.F. (2014). Catalysis and Morphogenesis: The Contextual Semiotic Configuration of Form, Function, and Fields of Experience. In: Cabell K.R., and Valsiner J., editors, The catalyzing mind. Beyond models of causality. Annals of Theoretical Psychology. Vol. 11. New York: Springer.
  18. De Luca Picione, R., Freda, M. F. (2015). The processes of meaning making, starting from the morphogenetic theories of Renè Thom. Culture and Psychology., DOI: 10.1177/1354067X15576171
  19. De Luca Picione R, Freda M.F. and Cabell K. (2013). Semiotic Stems: An Analytical Tool Based on Deixis and Modal Articulation. Refining Analysis in a Semiotic Cultural Psychology: Analysis as the under-developed infrastructure for theorizing. Dialogue and Debate in the making of Theoretical Psychology – 15th Biennal ISTP Conference (International Society for Theoretical Psychology), Santiago – Chile, May 3-7, 2013.
  20. Douglas G., Axelrad M., Brandt M., Crabtree E., Dietrich J., French S., Gunn S., Karaviti L., Lopez M., Macias C., McCullough L., Suresh D. and Sutton R. (2010). Consensus in Guidelines for Evaluation of DSD by the Texas Children’s Hospital Multidisciplinary Gender Medicine Team. International Journal of Pediatric Endocrinology., DOI: 10.1155/2010/919707.Epub2010Oct17
  21. Engel G.L. (1977). The need for a new medical model: A challenge for biomedicine. Science, 196: 129-136. Fausto-Sterling A. (2000). The five sexes, revisited. The Sciences, 33 (2): 20-25.
  22. Fornari F. (1976). Simbolo e codice [Symbol and Code]. Milano: Feltrinelli.
  23. Fornari F. (1979). I fondamenti di una teoria psicoanalitica del linguaggio. [The foundations of a psychoanalytic theory of language]. Torino: Boringhieri.
  24. Foucault M. (1988). Nascita della clinica. Una archeologia dello sguardo medico. [The Birth of the Clinic: An Archaeology of Medical Perception]. Torino: Einaudi. Freda M.F. (2008). Narrazione e intervento in psicologia clinica [Narration and intervention in clinical psychology]. Napoli: Liguori Editore.
  25. Freda M.F. (2011). Understanding continuity to recognize discontinuity. Integrative Psychological & Behavioral Science, 45 (3): 335-346., DOI: 10.1007/s12124-011-9169
  26. Freda M.F. and de Luca Picione R. (2012). Relational and Organizational Value of Self-Positions. International Journal for Dialogical Science, 6 (1): 51-60.
  27. Freda M.F., De Luca Picione R. e Di Stazio F. (2012). L’articolazione modale come indicazione del rapporto tra soggettività e relazionalità [The modal articulation as an marker of the subjectivity/relationality relationship]. In Abstract book, IX Congresso Nazionale sulla Ricerca in Psicoterapia, Università degli Studi di Salerno, 14-16 settembre 2012, pag. 21. Momento Medico S.r.l.
  28. Freda M.F., De Luca Picione R., Martino, M.L. (2015). Time of Illness and Illness of Time. In: Simão L.M., Guimarães D.S. and Valsiner J., editors, Temporality: Culture in the Flow of Human Experience. Charlotte (NC): Information Age Publishing, pp. 209-234.
  29. Freda M.F. e De Luca Picione R. (2013). Cornici ermeneutiche della narrazione e sviluppo della riflessività nel dialogo clinico [Hermeneutic frames of narrative and development of reflexivity in the clinical dialogue]. Rivista di Psichiatria e Psicoterapia, 32 (4): 250-262.
  30. Freda M.F. (2013). Lo scaffolding psicologico alla relazione sanitaria. [Psychological scaffolding to healthcare relationship]. X Congresso Nazionale SIPSA. La ricerca delle buone pratiche in Psicologia della salute, 10-12 maggio 2013 Orvieto.
  31. Freda M.F., De Luca Picione R., Martino M.L. (2015). Time of Illness and Illness of Time. In: Simão L.M., Guimarães D.S. and Valsiner J., editors, Temporality: Culture in the Flow of Human Experience. Charlotte (NC): Information Age Publishing.
  32. Freda M.F. and De Luca Picione R. (2014). The identity as a system of translation of the boundary between subject and context. In: Salvatore S., Gennaro A. and Valsiner J., editors, Multicentric Identities in a Globalizing World, pp. 179-192. Charlotte: Information Age Publishing.
  33. Gagliasso E. and Frezza G. (2010). Metafore del vivente. Linguaggi e ricerca scientifica tra filosofia, bios e psiche [Metaphors of living. Languages and scientific research in philosophy, bios and psyche.]. Milano: FrancoAngeli.
  34. Green R. (2010). Robert Stoller’s Sex and Gender: 40 Years On. Arch Sex Behav, 39: 1457-1465.
  35. Greimas A.J. (1983). Del senso 2: narrativa, modalità, passioni. [On meaning II: narrative modalities and passions] (trad. it. Milano: Bompiani, 1985).
  36. Grmek M.D. (1995-1999). Histoire de la pensée médicale en Occident. [History of medical thought in the West.]. Paris: Seuil.
  37. Holmes M. (2009). Critical Intersex. Farnham: Ashgate Publishing.
  38. Hughes I.A., Nihoul-Fékété C., Thomas B. and Cohen-Kettenis P.T. (2007). Consequences of the ESPE/LWPES guidelines for diagnosis and treatment of Disorders of Sex Development, Best Practice & Research Clinical Endocrinology & Metabolism, 21 (3): 351-365.
  39. Harré R. and van Langenhove L. (1991). Varieties of positioning. Journal for the Theory of Social Behaviour, 21: 393-407.
  40. Harré R. and van Langenhove L. (1999). The Dynamics of Social Episodes. In: Harré R. and van Langenhove L., editors, Positioning Theory. Moral Contexts of Intentional Action. Oxford: Blackwell, pp. 1-13.
  41. Harré R. and Moghaddam F.M., editors (2003). The Self and Others. Positioning Individuals and Groups in Personal, Political, and Cultural Contexts. Westport: Praeger.
  42. Hughes I.A., Nihoul-Fékété C., Thomas B. and Cohen-Kettenis P.T. (2007), Consequences of the ESPE/LWPES guidelines for diagnosis and treatment of Disorders of Sex Development.
  43. Best Practice & Research Clinical Endocrinology & Metabolism, 21 (3): 351-365. Jakobson R. (1963). Essais de linguistique générale. [Essays of general linguistics.]. Paris: Minuit.
  44. Lakoff G. (1993). Contemporary theory of metaphor. In: Ortony A., editor, Metaphor and Thought (2nd ed.). Cambridge: Cambridge University Press, pp. 202-251.
  45. Laplantine F. (1988). Antropologia della malattia. [Anthropology of illness]. Firenze: Sansoni.
  46. Lewis D.K. (1973). Counterfactuals. Cambridge: Harvard University Press.
  47. Lewis D.K. (1986). On the Plurality of Worlds. Oxford: Blackwell Publishers.
  48. Linell P. (2009). Rethinking Language, Mind and World Dialogically: Interactional and Contextual Theories of Sense Making. Charlotte, NC: Information Age Publishing.
  49. Lotman J. (1985). La Semiosfera. L’asimmetria e il dialogo nelle strutture pensanti. [The Semiosphere. The asymmetry and dialogue in the structures thinking]. Venezia: Marsilio Editori.
  50. Matte Blanco I. (1975). The Unconscious as Infinite Sets: An Essay in Bi-Logic. London: Gerald Duckworth & Company.
  51. Meyer-Bahlburg H.F. (2008). Lignes de conduite pour le traitement des enfants ayant des troubles du développement du sexe – Treatment guidelines for children with disorders of sex development. Neuropsychiatrie de l’Enfance et de l’Adolescence, 56: 339-344.
  52. Neuman Y. (2014). Introduction to Computational Cultural Psychology. New York: Cambridge University Press.
  53. Newmann L. (2002). Sex, Gender and Culture: Issues in the Definition, Assessment and Treatment of Gender Identity Disorder. Clinical Child Psychology and Psychiatry, 7 (3): 1359-1045.
  54. Parsons T. (1951). Illness and the Role of the Physician: A Sociological Perspective. American Journal of Orthopsychiatry, 21: 452–460., DOI: 10.1111/J.1939-0025.1951.Tb00003.X
  55. Salvatore S. (2004). Inconscio e discorso. Inconscio come discorso. [Unconscious and discourse. Unconscious as discourse]. In: Ligorio B., a cura di, Psicologie e culture. Contesti, identità e interventi. [Psychologies and cultures. Contexts, identity and interventions] (pp. 125-155). Roma: Edizioni Carlo Amore.
  56. Salvatore S. (2013). The reciprocal inherency of self and context. Notes for a semiotic model of the constitution of experience. Interacções. The semiotic construction of Self, vol. 9, 24: 20-50.
  57. Salvatore S. and Freda M.F. (2011). Affect, unconscious and sensemaking. A psychodynamic, semiotic and dialogic model. New Ideas in Psychology, 29: 119-135., DOI: 10.1016/j.newideapsych.2010.06.001
  58. Salvatore S., Gennaro A. and Valsiner J. (2012). Making Sense of Infinite Uniqueness. Greenwich: Information Age Publishing.
  59. Salvatore S. and Valsiner J. (2009). Idiographic Science on its Way: towards Making Sense of Psychology. In: Salvatore S., Valsiner J., Strout S. and Clegg J., editors, Yearbook of Idiographic Science, Vol. II, Rome: Firera Publishing Group, pp. 9-19.
  60. Salvatore S. and Zittoun T. (2011). Cultural Psychology and Psychoanalysis. Pathway to Synthesis. Greenwich: Information Age Publishing.
  61. Saussurre de F. (1916). Cours de linguistique générale. [Course in General Linguistics]. Paris: Payot.
  62. Sax L. (2002). How Common Is Intersex? A Response to Anne Fausto-Sterling. The Journal of Sex Research, 39 (3): 174-178.
  63. Sebeok T.A. (1998). A sign is Just a sign. La semiotica globale. [A sign is Just a sign. The global semiotics]. Milano: Spirali.
  64. Slijper F.M.E., Frets P.G. and Boehmer A.L.M. (2000), Androgen insensitivity syndrome (AIS): Emotional reactions of parents and adult patients to the clinical diagnosis of AIS and its confirmation by androgen receptor gene mutation analysis. Hormone Research, 53: 9-15.
  65. Smorti A. (1994). Il pensiero narrativo. [Narrative Thinking]. Firenze: Giunti.
  66. Tourangeau R. and Rips L. (1991). Interpreting and evaluating metaphors. Journal of Memory and Language, 30: 452-472.
  67. Uexküll J. Von (1926). Theoretical biology. New York: Harcourt, Brace & Company Inc.
  68. Valsiner J. (2001). Cultural developmental psychology of affective process. Invited Lecture at the 15. Tagung der FachgruppeEntwicklungpsychologie der Deutschen Gesellschaft für Psychologie, Postdam, September, 5.
  69. Valsiner J. (2007). Culture in minds and societies. Foundation of Cultural Psychology. New Delhi: Sage Publications.
  70. Volli U. (2005). Manuale di semiotica. [Handbook of semiotics]. Bari: Laterza.
  71. Vygotsky L.S. (1978). Mind in society: The development of higher psychological processes. Cambridge, Massachusetts: Harvard University Press.
  72. Weizsäcker von V. (1956). Pathosophie. Göttingen: Vandenhoeck & Ruprecht.
  73. Zittoun T. (2006). Transitions: Development through symbolic resources. Greenwich, Connecticut: Information Age Publishing.



  1. Giovanna Esposito, António P. Ribeiro, Miguel M. Gonçalves, Maria Francesca Freda, Mirroring in Group Counseling: Analyzing Narrative Innovations in Small Group Research /2017 pp. 391, DOI: 10.1177/1046496417697149
  2. Raffaele De Luca Picione, Maria Luisa Martino, Maria Francesca Freda, Modal articulation: The psychological and semiotic functions of modalities in the sensemaking process in Theory & Psychology /2018 pp. 84, DOI: 10.1177/0959354317743580
  3. Raffaele De Luca Picione, Maria F Freda, Possible use in psychology of threshold concept in order to study sensemaking processes in Culture & Psychology /2016 pp. 362, DOI: 10.1177/1354067X16654858
  4. Raffaele De Luca Picione, Jaan Valsiner, Psychological functions of semiotic borders in sense-making: Liminality of narrative processes in Europe’s Journal of Psychology /2017 pp. 532, DOI: 10.5964/ejop.v13i3.1136
  5. Maria Francesca Freda, Livia Savarese, Maria Bova, Anna Galante, Raffaella De Falco, Raffaele De Luca Picione, Gianni Marone, Angelica Petraroli, Gerarda Siani, Paolo Valerio, Massimo Triggiani, Stress and Psychological Factors in the Variable Clinical Phenotype of Hereditary Angioedema in Children: A Pilot Study in Pediatric Allergy, Immunology, and Pulmonology /2016 pp. 6, DOI: 10.1089/ped.2015.0557
  6. Maria Luisa Martino, Maria Francesca Freda, Meaning-making process related to temporality during breast cancer traumatic experience: The clinical use of narrative to promote a new continuity of life in Europe’s Journal of Psychology /2016 pp. 622, DOI: 10.5964/ejop.v12i4.1150

Picione Raffaele De Luca, Francesca Dicé, Maria Francesca Freda, in "PSICOLOGIA DELLA SALUTE" 2/2015, pp. 47-75, DOI:10.3280/PDS2015-002004

   

FrancoAngeli è membro della Publishers International Linking Association associazione indipendente e no profit per facilitare l'accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche