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"Dangerous liaisons" Critical reflections on vulnerability, disability and law
Titolo Rivista: SOCIOLOGIA DEL DIRITTO  
Autori/Curatori: Maria Giulia Bernardini 
Anno di pubblicazione:  2018 Fascicolo: Lingua: Inglese 
Numero pagine:  23 P. 101-123 Dimensione file:  318 KB
DOI:  10.3280/SD2018-001005
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più:  clicca qui   qui 


The attitude of the disability rights advocates towards vulnerability is extremely complex, given the ambiguity of this concept, which is used in the process of "othering", as well as of including people with disabilities. In this essay, I will refer to some of the main contemporary debates concerning vulnerability widespread in the field of social-sciences, in order to verify their usefulness for the instances of persons with disabilities. To this aim, I will particularly consider the literature pertaining to feminist and disability studies, trying to highlight simi-larities and divergencies between them. In the second part, I will focus on the legal debate concerning vulnerability, evaluating to what extent it is helpful for the recognition of the full legal subjectivity of persons with disabilities.


Keywords: Vulnerability, CRPD, Feminism, Legal capacity, Vulnerable subject, Fineman

  1. Adorno, Roberto, 2016. Is Vulnerability the Foundation of Human Rights?. In Aniceto Masferrer & Emilio García-Sánchez (eds.), Human Dignity and the Vulnerable in the Age of Rights. Dordrecht: Springer.
  2. Arstein-Kerslake, Anna (ed.), 2017a. Disability Human Rights Law. Basel: Mdpi Ag.
  3. 2017b. Restoring Voice to People with Cognitive Disabilities. Realizing the Right to Equality before the Law. Cambridge MA: Cambridge University Press.
  4. & Eilinóir Flynn, 2014. The Support Model of Legal Capacity: Fact, Fiction, or Fantasy? Berkeley Journal of International Law, 32, 1: 124-143., 10.15779/Z38494GDOI: 10.15779/Z38494G
  5. & Eilinóir Flynn, 2016. The General Comment on Article 12 of the Convention on the Rights of Persons with Disabilities: a Roadmap for Equality before the Law. The International Journal of Human Rights, 20, 4: 471-490., 10.1080/13642987.2015.1107052DOI: 10.1080/13642987.2015.1107052
  6. Barnes, Marian, Tula Brannelly, Lizzie Ward & Nicki Ward, 2015. Ethics of Care. Critical Advances in International Perspective. Bristol: Policy Press.
  7. Barranco Avilés, Maria del Carmen, 2015. Human Rights and Vulnerability: Examples of Sexism and Ageism. The Age of Human Rights Journal, 5: 29-49.
  8. Bartlett, Peter, 2012. The United Nations Convention on the Rights of Persons with Disabilities and Mental Health Law. Modern Law Review, 75, 5: 752-778.
  9. Beckett, Angharad E., 2006. Citizenship and Vulnerability: Disability and Issues of Social and Political Engagement. Palgrave: Macmillan.
  10. Bernardini, Maria Giulia, 2017. Corpi muti. Per una critica alla prevalente irrapresentabilità del soggetto-donna disabile nel pensiero femminista. In Brunella Casalini (a cura di), Il peso del corpo e la bilancia della giustizia. Roma: IF Press.
  11. 2017. Il soggetto vulnerabile. Status e prospettive di una categoria (giuridicamente) controversa. Rivista di filosofia del diritto, 6, 2: 365-384.
  12. & Orsetta Giolo (a cura di), 2017. Le teorie critiche del diritto. Pisa: Pacini.
  13. Brotto, Sara, 2013. Etica della cura. Una introduzione. Nocera Inferiore: Orthoses.
  14. Burgorgue-Larsen, Laurence, 2014. La vulnérabilité saisie par la philosophie, la sociologie et le droit. De la nécessité d’un dialogue interdisciplinaire. In Laurence Burgorgue-Larsen (eds.), La vulnérabilité saisie par les juges en Europe. Paris: Pedone.
  15. Butler, Judith, 2015. Notes Toward a Performative Theory of Assembly. Cambridge (MA): Harvard University Press.
  16. Casadei, Thomas, 2012. I diritti sociali: un percorso filosofico-giuridico. Firenze: Firenze University Press.
  17. 2017. Diritto e (dis)parità. Dalla discriminazione di genere alla democrazia paritaria. Roma: Aracne.
  18. Casalini, Brunella, 2015. L’etica della cura e il pensiero femminista: tra dipendenza e autonomia. In Thomas Casadei (a cura di), Donne, diritto, diritti. Prospettive del giusfemminismo. Torino: Giappichelli.
  19. & Lorenzo Cini (a cura di), 2012. Giustizia, uguaglianza e differenza: una guida alla lettura della filosofia politica contemporanea, Firenze: Firenze University Press.
  20. Cendon, Paolo, 1988. Un altro diritto per il malato di mente. Esperienze e soggetti della trasformazione. Napoli: Edizioni Scientifiche Italiane.
  21. Christman, John, and Joel Anderson (eds.), 2005. Autonomy and the Challenges to Liberalism: New Essays. New York: Cambridge University Press.
  22. Clough, Beverley, 2017. Disability and Vulnerability: Challenging the Capacity/Incapacity Binary. Social Policy & Society, 16, 3: 469-481., 10.1017/S1474746417000069DOI: 10.1017/S1474746417000069
  23. Coleman, Carl H., 2009. Vulnerability as a Regulatory Category in Human Subject Research. Journal of Law, Medicine & Ethics, 37, 1: 12-18., 10.1017/S1474746417000069DOI: 10.1017/S1474746417000069
  24. Devi, Nadine, 2013. Supported Decision-Making and Personal Autonomy for Persons with Intellectual Disabilities: Article 12 of the UN Convention on the Rights of Persons with Disabilities. Journal of Law, Medicine & Ethics, 41: 792-806.
  25. Dhanda, Amita, 2006-2007. Legal Capacity in the Disability Rights Convention: Stranglehold of the Past or Lodestar for the Future?. Syracuse Journal of International Law and Commerce, 34: 429-462.
  26. Di Santo, Rocco, 2013. Sociologia della disabilità. Teorie, modelli, attori e istituzioni. Milano: FrancoAngeli.
  27. Dixon Weaver, Jessica, 2013. Grandma in the White House: “Legal Support for Intergenerational Caregiving”. Seton Hall Law Review, 43: 1-74.
  28. Douzinas, Costas, & Adam Gearey, 2005. Critical Jurisprudence: The Political Philosophy of Justice. Bloomsbury: Hart.
  29. Dudley, Michael, Derrick Silove & Fran Gale (eds.), 2012. Mental Health and Human Rights. Vision, Praxis and Courage. Oxford: Oxford University Press.
  30. Dunn, Michael, 2013. When Are Adult Safeguarding Interventions Justified? In Julie Wallbank & Jonathan Herring (eds.), Vulnerabilities, Care and Family Law. London: Routledge.
  31. Isabel C.H. Clare & Anthony J. Holland, 2008. To Empower or to Protect? Constructing the “Vulnerable Adult” in English Law and Public Policy. Legal Studies, 28, 2: 234-253.
  32. Facchi, Alessandra (a cura di), 2016. Diritti sociali veri diritti? Monographic part of Ragion pratica, 2.
  33. Fallon-Kund, Marie, & Jerome Bickenbach, 2016. Strengthening the Voice of Persons with Mental Health Problems in Legal Capacity Proceedings. Laws, 5, 29: 1-14.
  34. Ferrajoli, Luigi, 2007. Principia Juris. Teoria del diritto e della democrazia. Roma-Bari: Laterza.
  35. Ferrarese, Estelle, 2013. Les vulnérables et le géomètre. Sur les usages du concept de vulnérabilité dans les sciences sociales. Raison Pratique: -- http://www.raison-publique.fr/article655.html (accessed 3 April 2017).
  36. Ferrucci, Fabio, 2004. La disabilità come relazione sociale. Gli approcci sociologici tra natura e cultura. Soveria-Mannelli: Rubbettino.
  37. Fine, Michael, 2007. A Caring Society? Care and the Dilemmas of Human Service in the 21st Century. Basingstoke and New York: Palgrave Macmillan.
  38. Fineman, Martha A., 2008. The Vulnerable Subject: Anchoring Equality in the Human Condition. Yale Journal of Law and Feminism, 20, 1: 1-23.
  39. 2010. The Vulnerable Subject and the Responsive State. Emory Law Journal, 60, 2: 251-275.
  40. & Anna Grear (eds.), 2013. Vulnerability. Reflections on a New Ethical Foundation for Law and Politics. Ashgate: Aldershot.
  41. Garland-Thomson, Rosemarie, 2002. Integrating Disability, Transforming Feminist Theory. National Women’s Studies Association Journal, 14, 3: 1-32.
  42. Giolo, Orsetta, 2016. Eguaglianza e pari opportunità sono conciliabili? Un tentativo di chiarificazione concettuale (e di proposta politico-giuridica). In Francesca Rescigno (a cura di), Percorsi di eguaglianza. Torino: Giappichelli.
  43. Goodin, Robert E., 1985. Protecting the Vulnerable. A Reanalysis of Our Social Responsibilities. Chicago: University of Chicago Press.
  44. Hall, Kim, 2011. Feminist Disability Studies. Indiana: Indiana University Press.
  45. Hensel, Wendy F., 2005. The Disabling Impact of Wrongful Birth and Wrongful Life Actions. Harvard Civil Rights-Civil Liberties Law Review, 40: 141-195.
  46. Herring, Jonathan, 2016. Vulnerable Adults and the Law. Oxford: Oxford University Press.
  47. Ippolito, Francesca, & Sara Iglesias Sánchez (eds.), 2015. Protecting Vulnerable Groups. The European Human Rights Framework. Oxford -Portland: Hart.
  48. Jaffee, Laura, 2016. Marxism and Disability Studies. In Encyclopedia of Educational Philosophy and Theory.
  49. Jones, Melinda, 2011. Valuing All Lives – Even “Wrongful” Ones. In Marcia H. Rioux, Ann Basser Lee & Melinda Jones (eds.), Critical Perspectives on Human Rights and Disability Law. Leiden, Boston: Martinus Nijhoff Publishers.
  50. Kaul, Kate, 2013. Vulnerability for Example: Disability Theory as Extraordinary Demand. Canadian Journal of Women and the Law, 25, 1: 81-110.
  51. Kittay, Eva Feder, 1999. Love’s Labor. Essays on Women, Equality, and Dependency. New York: Routledge.
  52. 2005. Equality, Dignity and Disability. In Mary Ann Lyons & Fionnuala Waldron (eds.), Perspectives on Equality: the Second Seamus Heaney Lectures. Dublin: The Liffey Press.
  53. & Ellen Feder, 2003. The Subject of Care: Feminist Perspectives on Dependency. Lenham: Rowman & Littlefield.
  54. Kohn, Nina, 2014. Vulnerability Theory and the Role of the Government. Yale Journal of Law & Feminism, 26, 1, article 2.
  55. Kong, Camillia, 2015. The Convention for the Rights of Persons with Disabilities and Article 12: Prospective Feminist Lessons against the “Will and Preferences” Paradigm. Laws, 4, 4: 709-728.
  56. Kroger, Teppo, 2009. Care Research and Disability Studies: Nothing in Common?. Critical Social Policy, 29, 3: 398-420.
  57. Lid, Inger M., 2015. Vulnerability and Disability: a Citizenship Perspective. Disability & Society, 30, 10: 1554-1567., 10.1080/09687599.2015.1113162DOI: 10.1080/09687599.2015.1113162
  58. Mackenzie, Catriona, & Natalie Stoljar (eds.), 2000. Relational Autonomy: Feminist Perspectives on Autonomy, Agency and the Social Self. New York: Oxford University Press.
  59. 2014. The Importance of Relational Autonomy and Capabilities for an Ethics of Vulnerability. In Catriona Mackenzie, Wendy Rogers & Susan Dodds (eds.), Vulnerability. New Essays in Ethics and Feminist Philosophy. Oxford-New York: Oxford University Press.
  60. Wendy Rogers & Susan Dodds (eds.), 2014. Vulnerability. New Essays in Ethics and Feminist Philosophy. Oxford-New York: Oxford University Press.
  61. Mancini, Letizia, & Barbara Bello (eds.), 2016. Intersectionality, Law and Society. Monographic issue of Sociologia del diritto, 2.
  62. Matsuda, Mari J., 1989. Public Response to Racist Speech: Considering the Victim’s Story. Michigan Law Review, 87, 8: 2320-2381.
  63. McSherry, Bernadette, & Penelope Weller (eds.), 2010. Rethinking Rights-Based Mental Health Laws. Oxford & Portland: Hart.
  64. Medeghini, Roberto, 2013. Norma e normalità nei Disability Studies. Riflessioni e analisi critica per ripensare la disabilità. Trento: Erikson.
  65. Minkowitz, Tina, 2014. Rethinking Criminal Responsibility from a Critical Disability Perspective: The Abolition of Insanity/Incapacity Acquittals and Unfitness to Plead, and Beyond. Griffith Law Review, 23: 434-466., 10.1080/10383441.2014.1013177DOI: 10.1080/10383441.2014.1013177
  66. Minow, Martha, 1991. Equalities. The Journal of Philosophy, 88, 11: 633-644.
  67. Morondo Taramundi, Dolores, 2016. ¿Un nuevo paradigma para la igualdad? La vulnerabilidad entre condición humana y situación de indefensión. Cuadernos Electronicós de Filosofía del Derecho, 34: 205-221., 10.7203/CEFD.34.8916DOI: 10.7203/CEFD.34.8916
  68. Morris, Jenny, 1993. Independent Lives? Community Care and Disabled People. London: Macmillan.
  69. 1997. Care or Empowerment? A Disability Rights Perspective. Social Policy & Administration, 31, 1: 54-60., 10.1111/1467-9515.00037DOI: 10.1111/1467-9515.00037
  70. 2001. Impairment and Disability: Constructing an Ethics of Care that Promotes Human Rights. Hypatia, 16, 4: 1-16.
  71. Nedelsky, Jennifer, 2011. Law’s Relations. A Relational Theory of Self, Autonomy, and Law. New York: Oxford University Press.
  72. Oliver, Mike, 1990. The Politics of Disablement: A Sociological Approach. Basingstoke: Palgrave Macmillan.
  73. Peroni, Lourdes, & Alexandra Timmer, 2013. Vulnerable Groups: The Promise of an Emerging Concept in European Human Rights Convention Law. International Journal of Constitutional Law, 11, 4: 1056-1085.
  74. Richardson, Genevra, 2015. Mental Disabilities and the Law: From Substitute to Supported Decision-Making?. Current Legal Problems, 65, 1: 333-354.
  75. Rossi, Stefano, 2017. Forme della vulnerabilità e attuazione del programma costituzionale. Rivista AIC, 2: 1-61: -- http://www.rivistaaic.it/forme-della-vulnerabilit-e-attuazione-del-programma-costituzionale.html (accessed 17 April 2017).
  76. Satz, Ani B, 2008. Disability, Vulnerability, and the Limits of Antidiscrimination. Washington Law Review, 83: 513-568.
  77. 2015. Vulnerability. In Rachel Adams, Benjamin Reiss & David Serlin (eds.), Keywords for Disability Studies. New York: New York University Press.
  78. Sciurba, Alessandra, 2015. La cura servile, la cura che serve. Pisa: Pacini.
  79. Series, Lucy, Anna Arstein-Kerslake & Elizabeth Kamundia, 2017. Legal Capacity: A Global Analysis of Reform Trends. In Peter Blanck & Eilionoir Flynn (eds.), Routledge Handbook of Disability Law and Human Rights. London: Routledge.
  80. Shakespeare, Tom, 2014. Disability Rights and Wrongs Revisited. Oxon: Routledge.
  81. & Nicholas Watson, 2001. The Social Model of Disability: an Outdated Ideology? In Barbara Altman & Sharon Barnartt (eds.), Exploring Theories and Expanding Methodologies: Where We Are and Where We Need to Go. Amsterdam-New York: JAI.
  82. Shildrick, Margrit, 2000. Becoming Vulnerable: Contagious Encounters and the Ethics of Risk. Journal of Medical Humanities, 21, 4: 215-227., 10.1023/A:1009025125203DOI: 10.1023/A:1009025125203
  83. Smith, Brenda, & Melissa Loomis, 2013. After Dothard: Female Correctional Workers and the Challenge to Employment Law. FIU Law Review, 8: 469-500.
  84. Solomon, Jason, 2011. Civil Recourse as Social Equality. Florida State University Law Review, 39: 243-272.
  85. Thomas, Carol, 2007. Sociologies of Disability and Illness: Contested Ideas in Disability Studies and Medical Sociology. Palgrave: McMillan.
  86. Tronto, Joan, 2013. Caring Democracy: Markets, Equality and Justice. New York: New York University Press.
  87. Turner, Brian S., 2001. Disability and the Sociology of the Body. In Gary Albrecht, Katherine Delores Seelman, & Michael Bury (eds.), The Handbook of Disability Studies. London: Sage.
  88. 2006. Vulnerability and Human Rights. Pennsylvania: Pennsylvania State University Press.
  89. Watson, Nick, Linda McKie, Bill Hughes, Debra Hopkins & Sue Gregory, 2004. (Inter)dependence, Needs and Care. The Potential for Disability and Feminist Theorists to Develop an Emancipatory Model. Sociology, 38, 2: 331-350., 10.1177/0038038504040867DOI: 10.1177/0038038504040867
  90. Weller, Penelope, 2014. Reconsidering Legal Capacity: Radical Critiques, Governmentality and Dividing Practices. Griffith Law Review, 23: 498–518., 10.1080/10383441.2014.993499DOI: 10.1080/10383441.2014.993499
  91. Yoko Furusho, Carolina, 2016. Uncovering the Human Rights of the Vulnerable Subject and Correlated State Duties under Liberalism. UCL Journal of Law and Jurisprudence, 5, 1: 175-205., 10.14324/111.2052-1871.067DOI: 10.14324/111.2052-1871.067
  92. Zola, Irving, 1991. Bringing Our Bodies and Ourselves Back in: Reflections on a Past, Present, and Future “Medical Sociology”. Journal of Health and Social Behavior, 32, 1: 1-16., 10.2307/2136796DOI: 10.2307/2136796

Maria Giulia Bernardini, in "SOCIOLOGIA DEL DIRITTO " 1/2018, pp. 101-123, DOI:10.3280/SD2018-001005

   

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