What ‘evidence’ do people really want and need for their recovery?

Autori/Curatori: Helen Glover, Patricia Tran
Anno di pubblicazione: 2022 Fascicolo: 1 Lingua: Italiano
Numero pagine: 17 P. 135-151 Dimensione file: 246 KB
DOI: 10.3280/RSF2022-001008
Il DOI è il codice a barre della proprietà intellettuale: per saperne di più clicca qui

Qui sotto puoi vedere in anteprima la prima pagina di questo articolo.

Se questo articolo ti interessa, lo puoi acquistare (e scaricare in formato pdf) seguendo le facili indicazioni per acquistare il download credit.
Acquista Download Credits per scaricare questo Articolo in formato PDF

anteprima articolo

FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

Having access to lived-experience wisdom and knowledge is no longer optional but essential for help seekers to live well, and in turn for help providers to deliver more relevant and meaningful services. To date, mental health research agendas have primarily been concerned with producing clinical evidence that guides help providers as to the interventions that best reduce or ameliorate mental illness symptoms. This paper flips the focus to the nature of the type of ‘evidence’ people, who experience mental illness want and need in order to guide, activate and lead their own recovery. The authors’ draw both upon their shared anecdotal experiences of recovery, to explore the relevance and use of ‘clinical’ and ‘personal’ recovery evidence in people’s individual recovery journeys. People’s needs for evidence stretch beyond the ceiling of what ‘clinical’ recovery evidence currently offers. To thrive beyond the impact of mental ill health, people want to know more than how to manage symptoms. They want to know and experience: (i) recovery is real and possible, (ii) the notions underpinning personal recovery, not just clinical recovery, (iii) the lived experience collective wisdom and, (iv) most of all, how to protect themselves from any iatrogenic harm arising out of seeking help, such as institutionalisation, discrimination, stigma and oppression. Depending on their core beliefs and practice, mental health providers will either hinder or facilitate access to and utilisation of this knowledge. Decades of first-hand accounts provide testimony to the personal effort required to overcome the impacts of mental illness and its associated treatments. Lived experienced produced research provides rigour and strength to the ‘personal’ recovery evidence base and can stand side by side with its ‘clinical’ evidence counterpart. Both knowledge bases, whilst appearing tangential, are useful for people in recovery. Maintaining their separateness is unhelpful and limits access to necessary recovery knowledge for all. Only when research agendas synthesise these two wisdoms into a single evidence base will a new and more effective way of delivering services evolve.

  1. Beers, C. W. A mind that found itself: an autobiography (7th ed.). Doubleday, 1948.
  2. Rycroft-Malone, J., Harvey, G., Seers, K., Kitson, A., McCormack, B., & Titchen, A. An exploration of the factors that influence the implementation of evidence into practice. J Clin Nurs, 13(8), 913-924. 2004.
  3. Dalzell, T. The reception of Eugen Bleuler in British psychiatry, 1892-1954. Hist Psychiatry, 21(3), 325-339. 2010. DOI: 10.1177/0957154X09342761
  4. Hoff, P. Kraepelin and degeneration theory. Eur Arch Psychiatry Clin Neurosci, 258 (Suppl 2), 12-17. 2008.
  5. Alain Topor, J. S., Carsten Bjerke, Elin Kufås & Marit Borg. Managing the contradictions Recovery from severe mental disorders. 2001. Amering, M., Oades, L., & Slade, M. Recovery: an international perspective. Epidemiologia e Psichatria Sociale, 17(2), 10. 2008.
  6. Ashikaga, T. B., Alan Brooks, George Harding, Courtenay Strauss, John. The Vermont longitudicinal study of persons with severe mental illness 2: long-term outcome of subjects who retrospectively met DSM-3 criteria for schizophrenia. Am J Psychiatry, 144(6), 9. 1987.
  7. Calabrese, J. C., Patrick. Beyond dementia praecox: findings from long-term follow-up studies of schizophrenia. In P. R. Corrigan, Ruth (Ed.), Recovery in Mental Illness: Broadening our understanding of wellness (pp. 24). American Psychological Association. 2005.
  8. Davidson, L. The Recovery Movement: Implications For Mental Health Care And Enabling People To Participate Fully In Life. Health Affairs, 35(6), 1091-1097. 2016.
  9. Harding, C. Z., James. Empirical correction of seven myths about schizophrenia with implications for treatment. Acta Psychiatrica Scandinavica, 7. 1994.
  10. Rycroft-Malone, J., Seers, K., Titchen, A., Harvey, G., Kitson, A., & McCormack, B. What counts as evidence in evidence-based practice? J Adv Nurs, 47(1), 81-90. 2004.
  11. Schrank, B. S., Mike. Recovery in psychiatry. Psychiatric Bulletin, 31, 5. 2007.
  12. Slade, M., & Longden, E. Empirical evidence about recovery and mental health. BMC Psychiatry, 15(1), 285-285. 2015.
  13. Tooth, B., Kalyanasundaram, V., Glover, H., & Momenzadah, S. Factors consumers identify as important to recovery from schizophrenia. Australian Psychiatry, 11, 8. 2003.
  14. Warner, R. Does the scientific evidence support the recovery model? The Psychiatrist, 34, 4. 2010.
  15. DeSisto, M., Harding, C. M., McCormick, R. V., Ashikaga, T., & Brooks, G. W. The Maine and Vermont three-decade studies of serious mental illness. II. Longitudinal course comparisons. Br J Psychiatry, 167(3), 338-342. 1995.
  16. Cohen, P., & Cohen, J. Th e Clinician's Illusion. Arch Gen Psychiatry, 41(12), 1178-1182. 1984.
  17. Davidson, L., & Roe, D. Recovery from versus recovery in serious mental illness: One strategy for lessening confusion plaguing recovery. Journal of mental health (Abingdon, England), 16(4), 459-470. 2007. DOI: 10.1080/09638230701482394
  18. Onken, S. J., Craig, C. M., Ridgway, P., Ralph, R. O., & Cook, J. A.. An Analysis of the Definitions and Elements of Recovery: A Review of the Literature. Psychiatr Rehabil J, 31(1), 9-22. 2007. DOI: 10.2975/31.1.2007.9.2
  19. Adame, A. K., Roger. Recovery and the good life: how psychiatric survivors are revisioning the healing process. Journal of humanistic Psychology, 48, 24. 2007.
  20. Biringer, E., Davidson, L., Sundfor, B., Ruud, T., & Borg, M. Service users’ expectations of treatment and support at the Community Mental Health Centre in their recovery [Report]. Scandinavian Journal of Caring Sciences (3), 505. 2017.
  21. Deegan, P. Recovery and the Conspiracy of Hope The Sixth Mental Health Services Conference of Australia and New Zealand 1996, Brisbane. 1996.
  22. Dornan, D. D., Jeanne Onken, Steven Ralph, Ruth Ridgway, Priscilla. Mental Health Recovery: What helps and what hinders? – A national research project for the development of recovery facilitating system performance indicators 2003 Joint national conferences on mental health block grand and mental health statistics, Washington DC. 2003.
  23. Hancock, N., Smith-Merry, J., Jessup, G., Wayland, S., & Kokany, A. Understanding the ups and downs of living well: the voices of people experiencing early mental health recovery. BMC Psychiatry, 18(1), 121-121. 2018.
  24. Ralph, R. O., & Corrigan, P. W. Recovery in mental illness: Broadening our understanding of wellness. American Psychological Association. 2005. DOI: 10.1037/10848-000
  25. Ruth O. Ralph, P. D. At the Individual Level: A Personal Measure of Recovery. 2004.
  26. Wisdom, J. P., Bruce, K., Auzeen Saedi, G., Weis, T., & Green, C. A. ‘Stealing me from myself’: identity and recovery in personal accounts of mental illness. Aust N Z J Psychiatry, 42(6), 489-495. 2008. DOI: 10.1080/00048670802050579
  27. Glover, H. Lived experienced perspectives. In R. King, Lloyd, C., & Meehan, T., (Ed.), Handbook of Psychosocial Rehabilitation (pp. 28 - 42). Blackwell Publishing. 2007.
  28. Glover, H. Recovery, lifelong learning, empowerment & social inclusion: is a new paradigm emerging? In Ryan P, Ramon S, & Greacen S (Eds.), Empowerment, Lifelong Learning and Recovery in Mental Health : Towards a New Paradigm (pp. 15-35). Palgrave. 2012.
  29. Glover, H. Restoring the relevance of service provision to people’s lives: a personal and professional reflections. WAPR Bulletin, 34(1), 7-14. 2014.
  30. Deegan, P. The importance of personal medicine: A qualitative study of resilience in people with psychiatric disabilities. Scandinavian Journal of Public Health, 33, 7. 2005.
  31. MacDonald-Wilson, K. L., Deegan, P. E., Hutchison, S. L., Parrotta, N., & Schuster, J. M. Integrating Personal Medicine Into Service Delivery: Empowering People in Recovery. Psychiatr Rehabil J, 36(4), 258-263. 2013.
  32. Boydell, K. M., Honey, A., Glover, H., Gill, K., Tooth, B., Coniglio, F. Scanlan, J. N. Making Lived-Experience Research Accessible: A Design Thinking Approach to Co-Creating Knowledge Translation Resources Based on Evidence. International journal of environmental research and public health, 18(17), 9250. 2021.
  33. Honey, A., Boydell, K. M., Coniglio, F., Do, T. T., Dunn, L., Gill, K. Tooth, B. Lived experience research as a resource for recovery: a mixed methods study. BMC Psychiatry, 20(1), 456-456. 2020.
  34. Amering, M., Farkas, M., Hamilton, B., O’Hagan, M., Panther, G., Perkins, R., Whitley, R. Uses and abuses of recovery: implementing recovery-oriented practices in mental health systems. World Psychiatry, 13(1), 9. 2014.
  35. Bassman, R. Whose reality is it anyway? Consumers/Survivors/ex-patients can speak for themselves. Journal of humanistic Psychology, 41(4), 26. 2001.
  36. Corrigan, P. W., Druss, B. G., & Perlick, D. A. The Impact of Mental Illness Stigma on Seeking and Participating in Mental Health Care. Psychol Sci Public Interest, 15(2), 37-70. 2014. DOI: 10.1177/1529100614531398
  37. Horgan, A., O Donovan, M., Manning, F., Doody, R., Savage, E., Dorrity, C., Happell, B. ‘Meet Me Where I Am’: Mental health service users’ perspectives on the desirable qualities of a mental health nurse. Int J Ment Health Nurs, 30(1), 136-147. 2021.
  38. Sartorius, N. Iatrogenic stigma of mental illness. BMJ, 324, 1. 2002.

Helen Glover, Patricia Tran, What ‘evidence’ do people really want and need for their recovery? in "RIVISTA SPERIMENTALE DI FRENIATRIA" 1/2022, pp 135-151, DOI: 10.3280/RSF2022-001008