Patient engagement as a qualifier of the exchange between demand and supply of health: the case of chronicity

Journal title RICERCHE DI PSICOLOGIA
Author/s Guendalina Graffigna, Serena Barello
Publishing Year 2015 Issue 2015/3 Language Italian
Pages 14 P. 513-526 File size 211 KB
DOI 10.3280/RIP2015-003005
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The last decades’ changes in the epidemiological trends of chronic disease for the majority of Western population have introduced important changes in the organization and management of the healthcare systems. Therefore, health systems throughout the world are searching for new and effective ways of making their services more responsive to the new patients and the public health needs and demand. To make people aware of their health services options by supporting them in the decision-making process and to engage them in enacting preventive healthy behavior is crucial to achieve successful health outcomes and reduce healthcare costs. In this paper, we will outline a model that explains the subjective experience patients’ get through to be engaged in their care process and its implication for the patient-doctor relation and for the patient’s quality of life. Moreover, the concept of patient engagement will be discussed in relation to other concepts - such as patient adherence, patient compliance, self-management, patient involvement, patient participation, shared decision-making, and patient activation -traditionally used to denote the active role of patients in their care.

Keywords: Patient engagement, chronic disease, healthcare marketing, communication, quality of life, patient-doctor relation

  1. Anderson, E.B. (2002). Patient-centeredness: a new approach. Nephrology News & Issues, 16(12), 80-82.
  2. Aujoulat, I., d’Hoore, W., & Deccache, A. (2007). Patient empowerment in theory and practice: polysemy or cacophony? Patient Education and Counseling, 66, 13-20. DOI: 10.1016/j.pec.2006.09.008
  3. Barello, S., Graffigna, G., & Vegni, E. (2012). Patient engagement as an emerging challenge for healthcare services: mapping the literature. Nursing Research and Practice, 2012. DOI: 10.1155/2012/905934
  4. Barello, S., & Graffigna, G. (2014a) Engaging patients to recover life projectuality: An Italian cross-disease framework. Quality of Life Research, 24, 1087-1096. DOI: 10.1007/s11136-014-0846-x
  5. Barello, S., Graffigna, G., Savarese, M., & Bosio, A.C. (2014b) Engaging patients in health management: towards a preliminary theoretical conceptualization. Psicologia della Salute, 3, 11-33. DOI: 10.3280/PDS2014-003002
  6. Barello, S., & Graffigna, G. (2015a) Patient engagement in healthcare: pathways for shared decision-making. Neuropsychological Trends. 17, 53-65. DOI: 10.7358/neur-2015-017-bare
  7. Barello, S., Graffigna, G., & Meyer, C.E. (2015b). Ethics and etiquette in neonatal intensive care. A comment on the value of parents’ engagement in care and recommendations for further advancing the field. JAMA Pediatrics, 169(2):190. DOI: 10.1007/s11136-014-0846-x
  8. Barello, S., Graffigna, G., Vegni, E., Savarese, M., Lombardi, F., & Bosio, A.C. (2015c). “Engage me in taking care of my heart”: a grounded theory study on patient-cardiologist relationship in the hospital management of heart failure. BMJ Open ,5, e005582. DOI: 10.1136/bmjopen-2014-005582
  9. Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Selfmanagement approaches for people with chronic conditions: a review. Patient Education and Counseling, 48(2), 177-187. DOI: 10.1016/S0738-3991(02)00032-0
  10. Beaglehole, R., Epping-Jordan, J., Patel, V., Chopra, M., Ebrahim, S., Kidd, M., & Haines, A. (2008). Improving the prevention and management of chronic disease in low-income and middle-income countries: a priority for primary health care. The Lancet, 372(9642), 940-949. DOI: 10.1016/S0140-6736(08)61404-X.
  11. Bertoni, A., Donato, S., Graffigna, G., Barello, S., Parise, M. (2014) Engaged Patients, Engaged Partnerships: Singles and Partners in Front of an Acute Cardiac Event. Psychology, Health & Medicine, 15, 1-13. DOI: 10.1080/13548506.2014.969746
  12. Bosio, C.A., Graffigna, G., & Scaratti, G. (2012). Knowing, learning and acting in health care organizations and services: challenges and opportunities for qualitative research. Qualitative Research in Organizations and Management: An International Journal, 7, 256-74. DOI: 10.1108/1746564121127974
  13. Brodie, R.J., & Hollebeek, L.D. (2011). Advancing and consolidating knowledge about customer engagement. Journal of Service Research, 14(3), 283-284. Chicago. DOI: 10.1177/1094670511415523
  14. Mosen, D.M., Schmittdiel, J., Hibbard, J., Sobel, D., Remmers, C., & Bellows, J. (2007). Is patient activation associated with outcomes of care for adults with chronic conditions? The Journal of Ambulatory Care Management, 30(1), 21-29.
  15. Oxford Dictionary of English (3rd ed.) (2010). Oxford University Press.
  16. Stewart, M. (2001). Towards a global definition of patient centred care: the patient should be the judge of patient centred care. BMJ: British Medical Journal, 322(7284), 444. DOI: 10.1136/bmj.322.7284.444
  17. Vivek, S.D., Beatty, S.E., & Morgan, R.M. (2012). Customer engagement: Exploring customer relationships beyond purchase. The Journal of Marketing Theory and Practice, 20(2), 122-146. DOI: 10.2753/MTP1069-6679200201
  18. Von Korff, M., Gruman, J., Schaefer, J., Curry, S.J., & Wagner, E.H. (1997). Collaborative management of chronic illness. Annals of Internal Medicine,127 (12), 1097-1102. DOI: 10.7326/0003-4819-127-12-199712150-00008
  19. Wiederhold, B.K., Riva, G., & Graffigna, G. (2013). Ensuring the best care for our increasing aging population: health engagement and positive technology can help patients achieve a more active role in future healthcare. Cyberpsychology, Behavior, and Social Networking, 16(6), 411-412. DOI: 10.1089/cyber.2013.1520
  20. Lee, Y.Y., & Lin, J.L. (2010). Do patient autonomy preferences matter? Linking patient-centered care to patient–physician relationships and health outcomes. Social Science & Medicine, 71(10), 1811-1818. DOI: 10.1016/j.socscimed.2010.08.008
  21. Lawn, S., McMillan, J., & Pulvirenti, M. (2011). Chronic condition self-management: expectations of responsibility. Patient Education and Counseling, 84 (2), e5-e8. DOI: 10.1016/j.pec.2010.07.008
  22. Holman, H., & Lorig, K. (2000). Patients as partners in managing chronic disease. BMJ: British Medical Journal, 320(7234), 526-527. DOI: 10.1136/bmj.320.7234.526
  23. Hollebeek, L. (2011). Exploring customer brand engagement: definition and themes. Journal of Strategic Marketing, 19(7), 555-573. DOI: 10.1080/0965254X.2011.599493
  24. Hibbard, J.H., & Mahoney, E. (2010). Toward a theory of patient and consumer activation. Patient Education and Counseling, 78(3), 377-381. DOI: 10.1016/j.pec.2009.12.015
  25. Hibbard, J.H., Mahoney, E.R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the patient activation measure. Health Services Research, 40(6p1), 1918-1930. DOI: 10.1111/j.1475-6773.2005.00438.x
  26. Gruman, J., Rovner, M.H., French, M.E., Jeffress, D., Sofaer, S., Shaller, D., & Prager, D.J. (2010). From patient education to patient engagement: implications for the field of patient education. Patient Education and Counseling, 78(3), 350-356. DOI: 10.1016/j.pec.2010.02.002.Haynes,R.B.,&Sackett,D.L.(1979).Complianceinhealthcare.JohnsHopkinsUniversityPress
  27. Greene, J., & Hibbard, J.H. (2012). Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. Journal of General Internal Medicine, 27(5), 520-526. DOI: 10.1007/s11606-011-1931-2
  28. Graffigna, G., Barello, S., Bonanomi, A., & Lozza, E. (2015b) Measuring Patient Engagement: Development and Psychometric Properties of the Patient Health Engagement (PHE) Scale. Frontiers in Psychology, 6, 274. DOI: 10.3389/fpsyg.2015.00274
  29. Graffigna, G., Barello, S., & Triberti, S. (2015a). Patient Engagement: A Consumer-Centered Model to Innovate Healthcare. Berlin: DeGruyter Open (in press).
  30. Graffigna, G., Barello, S., Libreri, C., & Bosio, C.A. (2014). How to engage type-2 diabetic patients in their own health management: Implications for clinical practice. BMC Public Health, 14(1), 648. DOI: 10.1186/1471-2458-14-648
  31. Graffigna, G., Barello, S., & Riva, G. (2013). Technologies for patient engagement. Health Affairs, 32(6),1172-1172.(a) DOI: 10.1377/hlthaff.2013.0279
  32. Gambetti, R., & Graffigna, G. (2010). The concept of engagement. International Journal of Market Research, 52(6), 801-826. DOI: 10.2501/S147078531020166
  33. Gambetti, R., & Graffigna, G. (2009). The concept of engagement. A systematic analysis of the ongoing marketing debate. International Journal of Marketing Research, 52(6), 801- 826. DOI: 10.2501/S1470785310201661
  34. Fletcher, R.H. (1989). Patient compliance with therapeutic advice: a modern view. The Mount Sinai Journal of Medicine, New York, 56(6), 453-458.
  35. Fisher, E.B., Boothroyd, R.I., Coufal, M.M., Baumann, L.C., Mbanya, J.C., Rotheram-Borus, M.J., & Tanasugarn, C. (2012). Peer support for self-management of diabetes-improved outcomes in international settings. Health Affairs, 31(1), 130-139.
  36. Entwistle, V.A., & Watt, I.S. (2006). Patient involvement in treatment decision-making: the case for a broader conceptual framework. Patient education and counseling, 63(3), 268-278. DOI: 10.1016/j.pec.2006.05.002

Guendalina Graffigna, Serena Barello, Patient engagement come qualificatore dello scambio tra la domanda e l’offerta di salute: il caso della cronicità in "RICERCHE DI PSICOLOGIA " 3/2015, pp 513-526, DOI: 10.3280/RIP2015-003005