Il Senso di Padronanza della Malattia Cronica: una ricerca mixed Method con adulti affetti da Angioedema Ereditario

Titolo Rivista: PSICOLOGIA DELLA SALUTE
Autori/Curatori: Assunta Maiello, Livia Savarese, Raffaele De Luca Picione, Ersilia Auriemma, Daniela Pacella, Maria Bova, Mauro Cancian, Andrea Zanichelli, Giuseppe Spadaro, Maria Francesca Freda
Anno di pubblicazione: 2022 Fascicolo: 2 Lingua: Italiano
Numero pagine: 25 P. 55-79 Dimensione file: 311 KB
DOI: 10.3280/PDS2022-002005
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La condizione di cronicità comporta la necessità di promuovere una riorganizzazione, sia nell’immediato che a lungo termine, della propria esistenza in ragione delle proprie risorse, dei propri ruoli sociali, dei vincoli imposti dalla malattia. Il modello del Senso di Padronanza della Malattia (SdiP-M) cronica, intende focalizzarsi sul ruolo dei processi di sensemaking, con cui facciamo riferimento ad un modello di costruzione del significato soggettivo dell’esperienza sottolineando la centralità del ruolo del paziente e delle sue competenze nella gestione della sua condizione di salute. In questo lavoro gli autori propongono un disegno di ricerca mixed me-thod che prevede l’adattamento dell’intervista narrativa sul Senso di Padronanza della Malattia somministrata a 28 adulti affetti da Angioedema Ereditario. Tali interviste sono state analizzate mediante un approccio theory driven volto ad esplorare le modalità attraverso cui si declinano le cinque funzioni della narrazione: articolazione temporale, integrazione dell’esperienza nella quotidianità, regolazione delle emozioni, supporto sociale e fronteggiamento. Mediante una Multiple Corrispondence Analysis ed una successiva cluster analysis sono stati identificati tre differenti profili di padronanza che rappresentano diversi gradi di flessibilità, integrazione e adattamento alla malattia. I risultati suggeriscono come la qualità di vita sia legata alla promo-zione dei processi che sono coinvolti nel SdiP-M, i quali appaiono di vitale importanza per sostenere l’engagement dell’individuo e del sistema sanitario che se ne fa carico.

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Assunta Maiello, Livia Savarese, Raffaele De Luca Picione, Ersilia Auriemma, Daniela Pacella, Maria Bova, Mauro Cancian, Andrea Zanichelli, Giuseppe Spadaro, Maria Francesca Freda, Il Senso di Padronanza della Malattia Cronica: una ricerca mixed Method con adulti affetti da Angioedema Ereditario in "PSICOLOGIA DELLA SALUTE" 2/2022, pp 55-79, DOI: 10.3280/PDS2022-002005