Caring for carers. Implications and repercussions of reduced attention to family caregivers on individual health and collective wellbeing

Journal title SOCIOLOGIA DEL LAVORO
Author/s Nicoletta Bosco
Publishing Year 2018 Issue 2018/150 Language Italian
Pages 16 P. 120-135 File size 119 KB
DOI 10.3280/SL2018-150007
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The condition of family caregivers - between tasks concerning the spheres of family reproduction and work - sheds light on many of the ambivalences which accompany the crisis of welfare systems and their sustainability. In Italy three draft laws on the urgency of a legal recognition and the safeguard of these figures are currently being examined. At the same time, many initiatives, led by different organizations are directing attention towards the risks of delegating care roles to the families, when those are not adequately supported. Due to the informal nature of this role, this remains a little known population, of which it is difficult to estimate consistency and characteristics. This contribution, based on national and international researches and data, offers an analysis aimed at investigating reflections on the consequences, particularly the social ones, of the failure to support family caregivers

Keywords: Family caregivers, burden, home based care, informal care

  1. Arno P.S., Levine C., Memmott M.M. (1999). The economic value of informal caregiving. Health Affairs, 18, 2: 182-188.
  2. Atti R. (2017). Per una politica nazionale sulla non autosufficienza. la Rivista delle Politiche Sociali, 1: 183-200.
  3. Barnes M. (2010). Storie di caregiver. Il senso della cura. Trento: Erickson.
  4. Breda M.G., Ciattaglia A. (2013). Non e sufficiente! Storie e proposte di chi lotta per garantire il diritto alle cure alle persone non autosufficienti. Milano: Altra Economia Soc. Coop.
  5. Censis-Aima (2016). L’impatto economico e sociale della malattia di Alzheimer. Rifare il punto dopo 16 anni. Sintesi dei Risultati, -- www.censis.it/5?shadow_evento=121110.
  6. Centola F. (2016). Riconoscere e valorizzare i caregiver familiari nei sistemi di welfare europei. WelfareOggi, 28, 6: 28-36. -- www.eurocarers.org/userfiles/files/Welfare%20Oggi%206_2016_article%20Centola.pdf.
  7. Cergas-Bocconi, a cura di (2016). Rapporto OASI 2016. Osservatorio sulle Aziende e sul Sistema Sanitario Italiano. Milano: Egea.
  8. Chamberlaine P., King A. (2000). Cultures of Care: Biographies of Carers in Britain and Two Germanies. Bristol: The Policy Press.
  9. Colombo F. et al. (2011). Help Wanted?: Providing and Paying for Long-Term Care. Paris: OECD Publishing. http://dx.doi.org/10.1787/9789264097759-en. Coordinamento Nazionale Famiglie Disabili (2016). Rapporto alternativo al comitato delle Nazioni Unite sui diritti delle persone con disabilita. -- http://tbinternet.ohchr.org/Treaties/CRPD/Shared%20Documents/ITA/INT_CRPD_CSS_ITA_25451_O.doc.
  10. Da Roit B., Facchini C. (2010). Anziani e badanti. Le differenti condizioni di chi e accudito e di chi accudisce. Milano: FrancoAngeli.
  11. Eurocarers (2009). Carers in Europe. --www.eurocarers.org/userfiles/files/factsheets/Carers%20in%20Europe%20-%202009.pdf.
  12. Eurocarers (2016). The impact of caregiving on informal carers’ mental and physical health. -- www.eurocarers.org/userfiles/files/factsheets/Eurocarers%20%20mental%20and%20physical%20health_final.pdf.
  13. Eurocarers (2017). Overview of carers’ needs and existing support measure across Europe. www.eurocarers.org/userfiles/files/factsheets/Eurocarers%20Situation%20of%20carers%20in%20EU.pdf.
  14. Facchini C. (2007). I care-givers degli anziani affetti da Alzheimer: tra stress e autovalorizzazione. Politiche Sociali e Servizi, 2: 191-209.
  15. Falasca G. (2017a). Le famiglie e le risorse per l’assistenza di lunga durata. Abitare e Anziani Informa, 1: 22-25.
  16. Falasca C., a cura di (2017b). Domiciliarita e residenzialita per l’invecchiamento attivo, Auser.
  17. Giacobini C. (2017). Caregiver familiari: norme in discussione al Senato, www.handylex.org/gun/caregiver_familiari_disegni_di_legge_senato.shtml, 17febbraio.
  18. Giacobini C. (2017b). Caregiver familiari: presentato il testo unificato. -- www.handylex.org/gun/caregiver_testo_unificato_senato.shtml, 28 settembre.
  19. Gori C. (2017). L’età dell’incertezza delle politiche per gli anziani non autosufficienti. la Rivista delle Politiche Sociali, 1: 163-182.
  20. Hoffmann F., Rodrigues R. (2010). Informal Carers: Who Takes Care of Them? --www.euro.centre.org/data/1274190382_99603.pdf.
  21. ISTAT (2011). La conciliazione tra lavoro e famiglia. Anno 2010.
  22. Marsili V., Melchiorre M.G., Lamura G. (2006). Ruolo e prospettive dei gruppi di auto mutuo aiuto per familiari caregiver di anziani non autosufficienti in Italia. Giornale di Gerontologia, 54: 240-248.
  23. Merrilees J. (2016). The Impact of Dementia on Family Caregivers: What Is Research Teaching Us? Current Neurology and Neuroscience Reports, 16, 10: 88-95.
  24. Montemurro F., Petrella A., a cura di (2016). Le politiche per gli anziani non autosufficienti nelle regioni italiane, SPI-CGIL, Torino: Ires Morosini, Torino.
  25. N.N.A., a cura di (2015). L’assistenza agli anziani non autosufficienti in Italia, V Rapporto. Un futuro da ricostruire. Rimini: Maggioli Editore.
  26. Phillips C.D. (2016). Integrating Estimates of the Social and Individual Costs of Caregiving into Dementia Treatment Trials. Health Services Insights, 9: 1-2. DOI: 10.4137/HSI.S39433
  27. Robison J., Fortinsky R., Kleppinger A., Shugrue N., Porter M. (2009). A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. Journal of Gerontology: Social Sciences, 64B, 6: 788-98.
  28. Roth D., Fredman L., Haley W.E. (2015). Informal Caregiving and Its Impact on Health: A Reappraisal From Population-Based Studies. Gerontologist, 55, 2: 309-319.
  29. Schulz R., Eden J., a cura di (2016). Families Caring for an Aging America. Washington (DC): National Academies Press (US).
  30. van der Lee J., Bakker T.J., Duivenvoorden H.J., Dröes R.M. (2014). Multivariate models of subjective caregiver burden in dementia: a systematic review. Ageing Research Reviews, 15: 76-93.
  31. Zanotti S., Vanini B., Ballerio M., Damiani S., Grazioli L., Veglia T.A., Emanuele E. (2013). Aspetti psicologici del ruolo di caregiver di pazienti affetti da Malattia di Alzheimer: tra Burden ed Empatia. Bollettino della Societa Medica Chirurgica di Pavia, 126, 2: 291-299. DOI: 10.6092/2039-1404.126.1535

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Nicoletta Bosco, Sostenere i curanti. Implicazioni e ricadute su salute individuale e benessere collettivo della ridotta attenzione ai caregiver familiari in "SOCIOLOGIA DEL LAVORO " 150/2018, pp 120-135, DOI: 10.3280/SL2018-150007